Friday, December 20, 2013

In the world of darkness



I was traveling to Vijayawada on Monday by the Janshatabdi express. A seven hour journey, it was not without its own story..!! The fact that my phone was dead forced me to focus on my surroundings like I used to, in the days gone by. 

Sitting on the adjacent seats next to me were a father -daughter duo.  So what was unique about them? 

The daughter, a young woman (probably in her twenties) was blind! She was talking to her father almost throughout the journey. I could not help but over hear the conversation considering I was seated right next to her. 

I found that most of the conversation was a litany of complaints. She was worried about people who were walking up and down the aisle ( though she was seated in the middle, with me at the window and her father at the aisle side). She was convinced that the pantry car staff who were selling snacks on the train were all set to molest her. When I bought coffee from a vendor and the cup was being passed to me across her seat she let out a loud scream saying that the chap was touching her. No amount of reassurance from  me or her father could calm her. And then after a while when I developed my allergic sneezing fit she had something new to complain about. Since she had heard me talking in Tamil to the vendors she had not realized that I also knew Telugu and could understand exactly what she was saying. She was telling her father that I must be suffering from some terrible illness which might be infectious! 

I must confess that I WAS quite irritated by now. Why? Well, it was because I once had a very close friend who was also blind and who was a completely different sort of person. 

I had met him my post graduate days. He was my senior. He was so self reliant that one could never believe that he did not have the sense of sight! I remember the first time I had met him. He was trying to dial a number. I butted in asking if I could help. He told me coldly that he would ask if he needed help with something. I was a bit hurt wondering why he was snapping. Afterwards when I met him again on campus he apologized. We became good friends. I used to help write his assignments and also used to read out books , newspapers and magazines. He was so very well adjusted with his disability that we used to admire him! What used to amaze me was the way he used to recognize us by the mere sound of our voices even in a noisy crowd! One of my friends had a way of creeping up behind him and taking his hand. He always knew it was her! He used to joke telling  us he knew it was her because as she was extremely fat the “earth shakes when she is around” He walked without support around campus and only used his cane when he went out. 

But he was not my only exposure to a person without the sense of sight. During my early days at Chennai when I used to stay at the YWCA I met another blind person - a young girl who was working in a bank. Her parents had died and the rest of the family did not want the responsibility of looking after her. So they had moved her to the working women’s hostel. But she was in no way like my friend from college.  She had an extreme lack of self confidence, always wanting someone to walk her to the dining room and across campus. She once told me that she wanted to get married but unluckily for her there were no blind men of marriageable age! She would never consider marrying a man with sight.  My thoughts went back to my friend from college who had always told me that he would marry any woman who appealed to him. She could be blind, be with sight or have any other disability!

And interestingly all these three people were born blind. Neither of them had eyes! So why this difference?

One of the reasons ofcourse is the way the family of a disabled person deals with their disability. In India, we tend to make them dependent. I also think the intrinsic gender differences existing in our society also plays out in the way disabled persons perceive and deal with their disability. Women in general are not taught to be confident and therefore is it surprising that a blind girl should always want someone next to her? In a world where women with all their faculties intact get molested it is but natural that a blind girl or woman should feel that men might want to touch them inappropriately.

I think there is also a need for attention that a blind person has – just to make their presence felt. This girl who was traveling with me was trying to get that from her father through her complaints. I remember, midway into the journey her father spotted an acquaintance. As the daughter was sleeping he left quietly from his seat and sat at the end of the coach talking to this person. When the girl woke up she was in panic as her father did not answer. No amount of reassurance from me would  make her quiet. She was yelling “Naana” ( daddy) every two minutes until her father heard her and rushed back . And after he came back, the girl gave him hell in a way that I have never heard anyone do before! She accused him of abandoning her, causing her “psychological distress” ( yes she used exactly these words). She then made up a story about the man sitting behind us who was supposedly touching her arm. I knew this was a lie because the moment her father left I had started watching over her closely. I guess she was doing this to make him feel guilty..! I don’t know how many disabled people and their families undergo regular counseling support in our country. If they did they might be able to handle such emotions better ( both the person with disability and the family). I suspect women do this “guilt trip” thing more than men. 

Being blind is something that only people who live in darkness understand. They deal with their dark realities differently and we from the world of light do little to help them. During  my return journey as I was waiting to board a train at the Vijaywada station at 1.00 AM I met a blind couple ( yes again..amazing coincidence !) – a young man and a girl. They were both holding on to each other and talking tenderly, oblivious to the world. When the train was announced the man asked people around where coach no S5 was expected to stop. Though there were displays along the platform stating where each coach was going to stop, no one bothered to direct them. They began trying to find their way around by themselves. When I heard the train whistle outside the station, I decided to take them to the spot because I was afraid they might fall from the platform on to the tracks. The man extended his arm and asked me to take him The girl held on to him. I wondered not only about the lack of sensitivity of people to the needs of this couple but also about the fact that despite the fact that both were blind it was the man who had been asking people for help. The girl was happy to follow him. I guess that places a bigger responsibility on a man who is blind. Should his wife also be blind he would still be expected to take the lead in any situation –whether he was prepared for it or not. And ofcourse it is a supremely confident man who would marry a woman who was not blind and not be suspicious about her.

We never understand or acknowledge disabled persons as individuals. To us their existence begins and ends with their disability. There is more to them than that! They are equally complex individuals subject to the same social and gender stereotypes that all of us are. Their disability just complicates matters further! 

I have noticed that many people without disabilities are extremely uncomfortable around people with disability. This is perceived by the disabled and it makes them all the more withdrawn into themselves. I wonder, why we do not accept people with disabilities with more ease in our country? We stare at them and often exhibit some unhealthy curiosity to know more about the nature of the disability. Yet, we do nothing to make the disabled feel good!  Until we change as a society we would continue to have disabled people who are unable to be self reliant. And that would be really unfair because ultimately it is self reliance that every disabled person seeks to achieve in their lives!

5 comments:

mahabore said...

That was quite a post starting off with that Vijayawada train journey moving on to your campus, talking about that girl who worked at the bank and ending at the railway station again :)

My personal take is that it all depends on the conditioning that the parents of blind kids provide them during their formative years that makes them the kind of people they become, strong and independent versus weak and dependent. Having said that, I can never fully understand the darkness of a blind person myself.

Lovely post :D

SG said...

They (people like this girl) behave this way because the family gives preferential treatment at the initial stages due to their disability. They then take advantage of this and try to control everyone around them. I knew a family who had 7 kids. This disabled kid was 4th child. Out of guilty feeling, the parents and siblings started to give him special privilege. The son took advantage of it and he started to “rule” the house. For example, he would decide who the siblings get married to and what would be the name of the baby for any child born in the home. Nothing should happen against his wishes. Even after the parents died, he decided who gets how much in allocation of parents’ assets. He ruled until the day he died.

KParthasarathi said...

Blind people especially the females are more vulnerable than others and might have faced unpleasant experiences.Even without such incidents,given their disability,they tend to be cautious,
suspicious and even jealous.Not all can be Helen Keller.It depends upon the upbringing and the parents role and financial status.We cannot judge these hapless by our standards.Job opportunities are very less and more of routine and repetitive nature.The poor suffer most.
There are a few things governments can do.
Education can be made free with residential facilities till they attain skill to earn their living.
Two or three schools in each district with special facilities for blind.
Special preferences in certain types of jobs that are most suited to them
Free medical facilities to correct or minimize the disability.
Identification of children with vision problems in time at schools for remedial action.

Divya said...

I feel the way the girl was reacting had actually nothing to do with her disability - even if she could see, she would still complain and whine! People are the way they are - they can blame their circumstances but the truth is that it is they, on their own, who define what they become!

TTS said...

Very well written and insightful post. Friends and family do play a major role in building up confidence of disabled people. In India, there is much much that can be done to help and assist the differently abled!

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